Hii, couldnt get on computer yeterday, we had a pretty good day all in all!! Speech and Language therapy was cancelled so we didnt have anythiing in morning untill play picnic! When we got there a German film crew from German TV station RTL and were doing a programme on the clinic :) Yay we gonna be on TV!! It was good and the programme is on here Saturday night so hopefully we can get a website for you to watch it at home! After the play picnic they came up to our room and asked if they could film the room and just me and Prof Dunitz playing with Lexi and her doll :) Woo i cant wait to see that!
We had occupational therapy in the afternoon and it was the same as any other day and Lexi particapated really well, shes got used to the therapists quickly they are good with her! We are getting so fed up of the hospital now we were at the stage yesterday where we thought we cant handle one more night there..! Alma and Conor had a great idea to see if we could check in to an apartment next to them for the weekend, we dont have anything on on the weekend in the hospital but we still are getting woken at 7 and gotta be up and sorted :( Great idea anyway so after our therapy we took a walk up to their apartment to see if it was available for Friday night (Tonight) and Saturday night! Yes it was Brill and we get discounted rates cos we are staying in the hospital! I booked it for the 2 nights thinking the hospital wouldnt have a problem with it as we dont do any thing anyway! So anyway we had food up at the main house last night it was Gorgeous! So today we were woken as usual after being up at 2am with Lexi, we had physio at 11, playpicnic at 12 and thats it for the day! We made our way to physio waited there for like 20mins and then asked someone passing where Eva was and she was off ill (again) lol! Then we had doctors rounds and i asked if it would be ok if we checked into a hotel for the weekend.... Nooo was the answer :( you cant until you are discharged because if theres an emergency they will take our room! Great! I was in a foul mood then cos i had got my hopes up i was soo looking forward to it, i kind of put up my arguement and in the end it was ok for one night :) YESSS that'l do lol..! So we are in the apartment now it is beautiful we are bang opposite Alma and Conor and we have a lush double Memory foam bed to sleep on and no cleaners to wake us!! Woo hoo!! We are gonna have a glass or two of wine try and cheer us all up today, the Australian family are coming down too, we have all had a bit of a bad day today :( Lexi is doing amazing again today (thank god) she has taken her milk realy well! Everytime she starts to bite or mess around, or push her bottle away me and dale get so scared cos we know how quickly she can just stop but thankfully she hasnt and shes got better today again, she drank 180mls for breakfast, 130ml for dinner and now shes asleep and will wake and have her tea :) The doctor asked me today if i was confident enough that she is having enough by mouth to go on and i said no way! She is having enough to sustain her wieght and to not have completely dry nappys, but shes not drinking enough to live on out of hospital (Yet) she will get there though shes on the right track!! Her weight is back up to 12.00kg :D she came to hospital 12.45kg and her lowest i think has been 11.30kg...! Ok well i shall update Monday and let you know how our lovely nights sleep is and our weekend was :) Lots of love to you all, missing everyone and home like mad now!! x x x x x x x x x x
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